Meet my 4th baby: Fragile Wings, Fierce Hearts 🦋 When Mackenzie was born, we were told she had a horrific disorder (Recessive Dystrophic Epidermolysis Bullosa), with a life full of pain ahead of her. But we were also told there was hope. That research had recently facilitated 2 new FDA approved treatments for EB (and 2 soon became 3 within a few months of Kenzie’s life!). That research was nearing the science behind what will likely become a cure. I understand that we are years away from a legi
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Jayco Discovery Gala 2025, proudly supporting the Cure EB Foundation! Our fabulous Triple Threats in Melbourne had such a lovely time performing some familiar classics 🪩💃 Thanks for having us @cureebfoundation! | Stage School Australia
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Cure EB is proud to be a fully research-focused charity. This year we've funded new projects and shared existing work at conferences and events. Take a look at the research we fund at www.cure-eb.org/currentresearch In 2026, we will continue to work towards our vision of effective treatments and a cure for EB! #Cure EB #ResearchtheCure #EpidermolysisBullosa #EB | Cure EB
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