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Including results for
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1:31
Watch Jackson's Journey with Neuromuscular Disease
1.1M views
Aug 19, 2025
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Jackson's Journey: Grief and Joy in Learning to Sit Up
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0:38
Everyone who knows Jackson knows how much he loves his pajamas! We get a lot of questions as to what pajamas he wears currently. Istill can’t believe we’ve had a year post hip surgery! #nemalinemyopathy #artheogryposis #pajamas #ad #spica
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A sweet throwback to some of the best memories with our little family. We loved camping before Jackson and did it all through the year. When he was born with his muscle disease, we “couldn’t” the only way we felt we could was if we bought a camper a generator. That way we had a way to charge his feeding pump and everything else we needed. It truly saved our sanity. Highly recommend taking your newborn camping! #camping #newborn #newbornbaby #disability #jacksonsjourney #throwback #camper #tubefe
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1:28
Trying new foods. We are SO PROUD. Being Gtube dependent his whole life has created SEVERE oral aversions. Some things I can’t set on his plate without him having a panic attack. So many wins for our big boy and we are so thankful! #nemalinemyopathy #rare #disease #gtube #tubefed #feedingtherapy #fy #toddler #artichoke #mashedpotatoes #iloveyou #arthrogryposis #amc #fypシ #funnytoddler #family #sahm #practicemakesprogress #educate #jacksonsjourney
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